Tuesday, August 16, 2005

fighting, fighting.

i am now experiencing the nightmare of Backordered Percorten-V, the stuff that keeps my sweet fuzzy faced girl alive, fer crying in the ketchup. there isn't any. i was lucky, i had a few ml's left from a previous vial, and was able to buy a ml from the vet, so pup will get her full shot this month. now we look at getting her onto Florinef, a pill form. i panicked when i began researching it - 3 or 4 sites had it listed as $1.39 per pill, and because it is given by weight, pup would need 9 pills a day. that's right, it would take about $375 a month to keep pup alive, not including her other meds, food and checkups, god forbid she have any more infections or emergencies. as i was seeing my financial future go further down the toilet, i happened onto a canadian site that carries Florinef for, get this, $0.29 cents a pill!! or somewhere around there. and so we go into a new adventure of finding ways to shove nine pills down pup's throat every day for the rest of her life. and figuring out the transition, and when her bloodwork should be checked now, side effects, and on... luckily, dr. m is back (and swamped) but i've played phone tag with her and she knows of my situation and wants pup to get on florinef now. i bet sales of that will skyrocket now.

this is my question, and it's a tiny one, really: how can a company not make a life-saving drug, from which they reap big profits? i know they are a for-profit business. i know drug companies are a necessary evil in our lives. and i know they don't give a shit about our precious pups and how far we will go to keep them safe and healthy. but they make the stuff - can there be a world-wide shortage of pivilate? or maybe they need to borrow a cup of desoxy?? or maybe the guy with the recipe left in a huff over being overlooked again for that promotion and a bigger cube - I DON"T CARE. MAKE THE DAMN MEDICATION. idiots.

i contacted Novartis, the manufacturer, and asked them why they were backordered, asked them to please hurry up and make it again. wonder if i'll hear from them...

i'm ready to have a boring, rut-filled life. i'm ready for pup to sleep by me on the couch, relaxed and satisfied by her easy, healthy life. i'm ready. my latest hopes: that pup will react well to the new meds, that she will learn to love having things shoved down her throat, that i will learn not to worry about things before they happen.

i have never fought so much as i have lately. for my pup, for my home, for my neighborhood, my world. i must be getting old, because i don't care what people think anymore. i know myself better than ever, and i will continue on that path, becoming more and more assured in my actions and beliefs. i will not be bullied anymore, i will not be afraid all the time. maybe it just took something worth fighting for.

peace, you big world, you.

4 Comments:

Blogger mckait said...

jen... first.. have you looked at or joined the addisons group I have a link to on my blog? I have gotten some great info there..
here is something I copied from there regarding an alternative you can get at a compounding pharmacy.. here it is
*********************************************
Actually, if you were to switch to fludrocortisone/Florinef and start with the
initial recommended starting dose (0.1 mg per 10 lbs), your costs would be even
cheaper than $100/two months. We go through Tiffany's Natural Pharmacy,
recommended by several ADog group members. Here is their info:

Donna Matthias CPhT
Tiffany Natural Pharmacy
1115 South Ave West
Westfield NJ 07090
Ph: (908) 233-2200
Fax: (908) 233-3975

You should DEFINITELY check with your vet about switching to fludro and find out
more about the pros and cons either by asking other ADog members or searching
previous posts.
**************************************
and in respone to something i asked...

There is no "prednisone" added to the brand name Florinef, and compounding
pharmacies don't "put the florinef and pred together" either. The artificial
hormone, fludrocortisone acetate, has a glucocorticoid component as part of its
chemical composition. This is why most dogs being treated with Florinef
(or the generic equivalent: fludrocortisone acetate) don't require ADDITIONAL
support with any of the traditional glucocorticoids: prednisone, prednisolone,
Medrol, hydrocortisone, et al. -except during times of stress when they'd
need a larger boost than what's "built in" to their Florinef.

************************************

but you should talk to your vet about all of it.. and come right out and thell him / her that you are fighting for your dogs life and you need them to have your back.. so they better get up to speed with this disease and be able to help you when you need it..
I did that.. i actually sent myvet info i found on the Adog site, including a novartis round table and a handout ...

also.. your vet should be on the phone calling novartis and letting them know in no uncertain terms that he has dogs whose lives depend on this..
*****************************************
as for the supply.. here is what happened.. early in the summer novartis had to toss a huge batch of percorten due to something having gone wrong.. or, at least that is their story..

letter from novatis to someone in the group

Its true, we've been having a slight issue with Percorten supply, but we've
got everything under control now. We had some minor complications with one
of our batches earlier this year which led to us rejecting the batch. That
coupled with high demand for the product put us in a tight spot for a few days.

The backorder was only in affect for a few days and we expect to fill those
by the end of the week. We've never really turned anyone away that truly
needed the product - but only made sure people weren't stockpiling it at this
point to make sure there was enough to go around. We've also increased our
safety stock of the product, again, so we are sure not to have this happen
again.

Hopefully that helps,

Jeff


Jeff Dillon
Novartis Animal Health
3200 Northline Avenue, Suite 300
Greensboro, NC 27408
**************************************
jenn... maybe we can talk on the phone one of these days? i can call long distance with no additional charges .. ( due to having kids all over the place .. ) and i can call you.. or not, if you don't feel good about that.. i have an account at gmail.com use mckait with that if you want to contact me there.. I will then email you with my primary account.. I hate to post an email that I actually use because .. well you know.. but if you use gmail, it shows on myhomepage and I will write back

if you are not comfortable talking on the phone thats okay..maybe you would like to have a look at the addisons dog message board? I do not listen to all of their advice.. but there is good information there and nice people..

This Addisons thing is expensive and scary.. I know.. as for the meds..

Have you reduced the amount of preds that your pup takes? I don't remember.. but once I did.. once i got dunkers down to 1.25 he has done better... and as for shoving things down her throat :P boy do i know what you mean.. but listen.. try cream cheese..

since duncan was diagnosed .. i have taken him from 10 mg preds to 1.25

it works like a charm for me.. wraps around the pill and i can either give it like a treat or just pop it on the food and you KNOW it has gone in and down..
I don't know about the other things you are fighting for... but i say keep fighting! there are lots of women who stand with you in imperceptable ways...in spirit and with intention..

anyway.. hang in there and contact me if you want to .. and we can sort walk this path together for a ways?

3:48 AM  
Blogger mckait said...

and one other thing.. since I just rescued Duncan in December.. I realized that I have never known him healthy..
The trembling that I thought was fear, was actually a symptom..
now that he is actually getting healthy..we are getting to know each other better.. he is much more mischievious than i thought! hehe

Even though he seems healthy, I am still worried every day.. scared, sometimees too.. but i am determined to listen to the good advice i find online, make sure my vet and the diagnosing vet / specialist do not ignore me.. us.. and to be honest.. follow my instict.. listen to my intuition.. I always regret it when I don't ...

3:53 AM  
Blogger mckait said...

how goes it? make your vet order now for next month!

grrrrrr damned novartis !

11:36 AM  
Blogger mckait said...

I am worried about you guys.. hope all is well and you got your meds...

7:23 AM  

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